European Reference Networks (ERN) are EU-funded networks of European centres, i.e. hospitals, university clinics with outstanding experience in the treatment of rare diseases and patient organizations. The aim of the ERNs is to improve patient care, for example through
- Developing, applying and disseminating uniform treatment standards,
- organizing training events and providing information material for both healthcare professionals and patients
- Coordinating research projects to better understand these rare diseases, including the operation of disease-specific registers
- Providing clinical expertise for other hospitals, doctors and patients, e.g. via the online platform "Clinical Patient Management System".
The ERN rare liver focuses on rare liver diseases in the area of
- autoimmune liver diseases (e.g. autoimmune hepatitis, primary sclerosing and primary biliary cholangitis)
- structural liver diseases (e.g. cystic liver diseases, liver vascular diseases, rare liver tumors)
- Metabolic and cholestatic liver diseases (e.g. biliary atresia, genetic metabolic disorders such as Wilson's disease)
- Liver diseases during pregnancy
- Acute liver failure
Patients/referrers are welcome to contact the following email address with any questions: ern.rareliver@mh-hannover.de