• Cystic fibrosis; also suspected cases for electrophysiological clarification.

• Lung function
• MBW (Multiple Breath Washout)
  - Early detection of lung dysfunction
• Welding test
• Electrophysiological investigations (Intestinal short circuit current measurement (ICM), nasal potential difference (nPD)
• Genetics of cystic fibrosis
• BIA measurement (body composition: fat, muscle and water)
• Performance diagnostics (bicycle ergometry)
• Physical activity measurements (with SensWear wristband)

Newborn screening: sweat test diagnostics
For appointments please contact the colleagues at +49 511 532 3251 or +49 1761 532 8601.

Contents of the nutritional counselling for cystic fibrosis:

• Digestive situation with and without cystic fibrosis
• Information on age-appropriate nutrition (from infants to adolescents)
• Kitchen technology options for energy enrichment
• Dietary product information about possibilities for energy enrichment
• Age-appropriate eating education
• The role and functioning of the digestive enzymes
• Being able to estimate the fat content of one's own eating habits in order to be able to optimally dose enzyme preparations (estimate: approx. 2000-3000 IU lipase / g dietary fat)
• Instructions for keeping nutritional and enzyme logs with subsequent evaluation as the basis for a nutritional consultation
• Dietary product selection with additional night tube feeding (PEG)

In connection with the following comorbidities, nutritional therapy for cystic fibrosis must be adjusted:

• Cystic fibrosis and intestinal obstruction (meconium ileus)
• Cystic fibrosis and diabetes mellitus (in-patient training for initial setting of insulin)
• Cystic fibrosis and cirrhosis of the liver
• Cystic fibrosis and condition before and after lung and liver transplantation

 

 

Sports-science support on an outpatient basis:

• Consultation on the subject of "Physical activity in CF patients" after the initial diagnosis
  - What is the importance of physical activity for cystic fibrosis patients
  - How important is an active lifestyle 

• Consultations during outpatient visits
  - Information on relevant sports science topics such as motivation, choice of activity, scope and intensity of an activity, energy and fluid balance
   Individual (annual) determination of the level of activity and performance
  - Creation of an individual activity plan as well as further support

• Phone consultation (Wednesdays: 3 p.m. - 4 p.m.; Tel: +49 1761 532 7800)
• Organization and implementation of sports science studies

In-patient sports therapy support (activity offers) such as

• Fitness exercises (in the room or in the sports hall)
• Walk around the site
• Playful activities in the courtyard such as badminton or table tennis

Illness and hospital stays are a special burden for every person, especially children. If this results in questions, worries, need for advice and clarification, our social services are there to help you. Our services are free of charge for you and all employees are of course subject to confidentiality. Our interdisciplinary team offers you assistance by advising and accompanying you regarding questions of social law, psychosocial and medical aids.