Publications

Dr. Irene Hirschberg

 

Research articles and book chapters

  • Spoden C, Wenzel O, Erdmann A, Neitzke G, Hirschberg I (2024): Coping and end-of-life decision-making in ALS: A qualitative interview study. PLoS ONE 19(6): e0306102. doi: 10.1371/journal.pone.0306102
  • Erdmann A, Spoden C, Hirschberg I, Neitzke G (2022). Talking about the end of life: communication patterns in amyotrophic lateral sclerosis - a scoping review. Palliative Care and Social Practice 16: 1-18. doi:10.1177/26323524221083676.
  • Krones T, Hirschberg I (2022): Preimplantation genetic diagnosis (PGD), in: Marckmann G (ed.). Praxisbuch Ethik in der Medizin, Berlin: MWV Medizinisch Wissenschaftliche Verlagsgesellschaft, 2nd, updated and expanded edition, pp. 341-353.
  • Erdmann A, Spoden C, Hirschberg I, Neitzke G (2021). The wish to die and hastening death in amyotrophic lateral sclerosis: A scoping review. BMJ Supportive & Palliative Care 11 (3): 271-287. doi:10.1136/bmjspcare-2020-002640.
  • Bossert S, Werdecker L, Strech D, Neitzke G, Dierks, ML, Meyer A, Hirschberg I (2020). Ethics University on Regenerative Medicine - a tool for informed opinion formation for laypersons?
    Electronic Long version: Gesundheitswesen 2020; 82: e124-e137. DOI 10.1055/a-1205-0672
    https://eref.thieme.de/ejournals/1439-4421_2020_11?context=cover#/10.1055-a-1205-0672
    Print Short version: Gesundheitswesen 2020; 82 (11): 852-853. DOI 10.1055/a-1205-0672
  • Hirschberg I, Kahrass H, Strech D (2016): Variation in consent documents in biobank research - A study of German biobanks, in: Rauprich, O., Jox, R., Marchmann, G. (eds.), From conflict to resolution: ethical decision-making pathways in biomedicine, Münster: mentis 2016, pp. 327-345.
  • Strech D, Hirschberg I, Meyer A, Baum A, Hainz T, Neitzke G, Seidel G, Dierks ML (2016): Ethics Literacy and "Ethics University": Two Intertwined Models for Public Involvement and Empowerment in Bioethics. Front Public Health 3: 287, doi: 10.3389/fpubh.2015.00287.
  • Lander J, Hainz T, Hirschberg I, Bossert S, Strech D (2016): Do Public Involvement Activities in Biomedical Research and Innovation Recruit Representatively? A Systematic Qualitative Review. Public Health Genomics, doi: 10.1159/000444478.
  • Strech D, Kahrass H, Hirschberg I (2015): Research Guideline Recommendations for Broad Consent Forms in Biobank Research and How They Are Currently Addressed in Practice. Am J Bioeth 15(9): 60-63.
  • Krones T, Hirschberg I (2015): Preimplantation genetic diagnosis (PGD), in: Marckmann G (ed.). Praxisbuch Ethik in der Medizin, Berlin: MWV Medizinisch Wissenschaftliche Verlagsgesellschaft, pp. 279-287.
  • Hirschberg I, Kahrass H, Strech D (2015): Practice variation across consent templates for biobank research. A survey of German biobanks, in: Vollmann J, Sandow V, Wäscher S, Schildmann J (Eds.): The Ethics of Personalized Medicine, Surrey: Ashgate, p. 97-111
  • Schildmann J, Hirschberg I, Vollmann J (2014): Ethical aspects of health communication, in: Hurrelmann K, Baumann E (eds.) Handbuch Gesundheitskommunikation, Bern: Hans Huber, pp. 493-502.
  • Hirschberg I, Kahrass H, Strech D (2014): International requirements for consent in biobank research: qualitative review of research guidelines. Journal of Medical Genetics 51(12):773-781.
  • Lander J, Hainz T, Hirschberg I, Strech D (2014): Current practice of public involvement activities in biomedical research and innovation. A systematic qualitative review. PLoS One 9(12). DOI: 10.1371/journal.pone.0113274
  • Hirschberg I, Knüppel H, Strech D (2013): Practice variation across consent templates for biobank research. A survey of German biobanks. Front. Genet. 4:240. DOI: 10.3389/fgene.2013.00240
  • Hirschberg I, Seidel G, Strech D, Bastian H, Dierks ML (2013): Evidence-based health information from the users' perspective - a qualitative analysis. BMC Health Services Research 13:405. DOI: 10.1186/10.1186/1472-6963-13-405
  • Hirschberg I, Littmann J, Strech D (2013): Where Public Health meets Ethics. Conceptual Foundations and Practical Challenges of Public Health, in: Strech D, Hirschberg I, Marckmann G (Eds.) Ethics in Public Health and Health Policy. Concepts, Methods, Case Studies, Dordrecht, Heidelberg, New York, London: Springer, pp. 5-23.
  • Hirschberg I, Strech D (2010): Public Health: an introduction to the theory and practice of the discipline, in: Strech, D., Marckmann, G. (eds.): Public Health Ethics. Münster: LIT Verlag: 15-42.
  • Stöckel S, Hirschberg I (2010): Prevention and health promotion - what role does health policy play? A historical review and outlook. Public Health 72(1): 35-40.
  • Veillard J, Hirschberg I (2009): Women's health and governance: lessons for strengthening health systems. Entre Nous. The European Magazine for Sexual and Reproductive Health 68: 10-11.
  • Hirschberg I, Frewer A (2009): Genetics, counseling and ethics. An introduction, in: Hirschberg et al. (eds.) Ethical Issues in Genetic Counseling: 9-21.
  • Hirschberg I (2009): Genetic counseling and ethics. Professional documents and sources, in: Hirschberg et al. (eds.) Ethical issues in genetic counseling: 333-351.

 

Monographs and edited books

  • Strech D, Hirschberg I, Marckmann G (Eds.) (2013): Ethics in Public Health and Health Policy. Concepts, Methods, Case Studies, Vol. 1, Series Public Health Ethics Analysis ed. by Selgelid M, Dordrecht, Heidelberg, New York, London: Springer.
  • Hirschberg I (2010): Evaluation and impact of evidence-based health information - the user's perspective. Public Health Master's thesis. Series "Patientenorientierung und Gesundheitskompetenz" der Patientenuniversität an der Medizinischen Hochschule Hannover, Institute of Epidemiology, Social Medicine and Public Health Research, Vol. 1, Eds: Dierks ML, Seidel G. Munich: GRIN Verlag.
  • Hirschberg I, Grießler E, Littig B, Frewer A (eds.) (2009): Ethical issues in genetic counseling. Clinical experiences, research studies and social perspectives. Series Clinical Ethics. Biomedicine in Research and Practice, Frankfurt/Main: Peter Lang Verlag.

 

Conference reports

  • Hirschberg I, Kahrass H (2018): Annual Conference of the AEM 2017: Good Medicine. Contribution of ethics to the discussion on quality in patient care and research. Ethics in medicine 30 (1), 75-78.
  • Hirschberg I (2010): Conference report. Workshop "Empirical Research in Medical Ethics", Bochum, May 19, 2010. Ethics in Medicine 22(4): 359-361.

 

Miscellaneous

  • Seidel G, Hirschberg I, Kreusel I, Dierks ML (2010): User testing of health information by the Institute for Quality and Efficiency in Health Care (IQWiG) Final report. Patients' University, Institute of Epidemiology, Social Medicine and Public Health Research, Hannover Medical School. Download PDF

 

Lectures

  • 09/2013: Annual conference of the Society for Medical Education (GMA), Graz: Hirschberg I, Neitzke G, Baum A, Seidel G, Bütehorn A, Dierks ML, Strech D: Ethics literacy as a concept for teaching ethics skills. Example of an ethics university for students on the topic of "regenerative medicine".
  • 09/2013: Annual Conference of the European Association of Centers of Medical Ethics (EACME), Bochum: Hirschberg I, Knüppel H, Strech D: Biobank and consent: an analysis of German consent documents for biobank research.
  • 03/2013: Conference "Alles, was Legal ist. Patients' rights under discussion" at the Center for Health Ethics (ZfG), Hanover: Hirschberg I: The informed patient - wish and reality.
  • 09/2010, 46th Annual Conference of the German Society for Social Medicine and Prevention (DGSMP), Berlin: Hirschberg I, Seidel G, Strech D, Dierks ML: Effect of evidence-based health information on potential users. An empirical study.
  • 03/2009, 10th Annual Conference of the German Network for Evidence-based Medicine (DNEbM), Berlin: Hirschberg I: Ethical evaluation of implicit and explicit resource allocation.
  • 06/2008, Conference "Promoting Health. Public Health zwischen individueller Freiheit, staatlichem Paternalismus und Gemeinwohl" im Zentrum für Gesundheitsethik (ZfG), Hannover: Stöckel S, Hirschberg I: Gesundheit als handlungsleitender Faktor der Politik in der historischen Entwicklung.
  • 11/2007, Annual Conference of the Society for Medical Education (GMA), Hanover: Frewer A, Hirschberg I, Bruns F, Fahr U: Medical Humanities in medical studies: Practical experiences in teaching history, theory and ethics.
  • 11/2007, Annual Conference of the GMA, Hannover: Stöckel S, Neitzke G, Wolters C, Hirschberg I (2007): History, theory and ethics of medicine (GTE): new content, innovative forms of teaching.

 

Poster

  • 10/2013: Annual Conference of the Academy for Ethics in Medicine, Munich: Hirschberg I, Knüppel H, Strech D: Biobank research and consent: an investigation of national consent forms.
  • 02/2010: 11th Annual Conference of the DNEbM, Salzburg: Hirschberg I, Seidel G, Strech D, Dierks ML: Reaction patterns of users to evidence-based health information. A qualitative analysis.