ABPATITE

Background

Hospice and palliative care for people with incurable, progressive illnesses has developed significantly in recent years, both in the inpatient and outpatient sector. This can be seen, for example, in the number of palliative care units, hospices, hospice services and specialized outpatient palliative care (SAPV) services available. A needs-based, patient-oriented overall concept for hospice and palliative care also includes palliative care day clinics and day hospices. In Germany, these day services are not defined by social legislation and have so far been initiated individually from care practice. It is therefore assumed that these day services have very heterogeneous structures and are developing unsystematically in the care landscape.

Objectives

The objectives of the ABPATITE project are

• To record the current stock of palliative care day clinics and day hospices in Germany and to analyze these facilities or Institutions in detail,
• to obtain an assessment of the needs of outpatient and inpatient hospice and palliative care providers.

The project focuses on the preferences of patients and their relatives for end-of-life care in order to assess the importance of palliative care day services from the perspective of those affected.

In the course of the project, recommendations for the future needs-based development and expansion of palliative care day clinics and day hospices in Germany will be developed as part of an implementation workshop and a consensus process.

Publications

A first article introducing the ABPATITE project was published as an attachment in the online edition of the Bundes-Hospiz-Anzeiger (08/2020).

Here you can read an interview conducted by Ms. Larissa Nubert (MDK Bayern) with the ABPATITE team.

• Apolinarski B, Burger B, Stahmeyer JT, Röwer HAA, Schneider N, Stiel S, Herbst FA. Financing of day hospices and palliative care day clinics: results of quantitative surveys of facility managers and health insurance companies in Germany. Gesundh ökon Qual manag. 2022; 27(02): 74-80 (Gesundh ökon Qual manag)

• Apolinarski B, de Jong L, Herbst FA, Huperz C, Röwer HAA, Schneider N, Damm K, Stiel S. Patients' and Relatives' Preferences for Outpatient and Day Care Services Within End-of-Life Care in Germany - A Discrete Choice Experiment. Patient Prefer Adherence. 2024; 18:519-529 (Dove Press)
• Apolinarski B, Herbst FA, Röwer HAA, Schneider N, Stiel S. Status quo of palliative care day clinics and day hospices in Germany: results of a mixed-methods study. Z Palliativmed. 2021; 22(04): 215-224 (Z Palliativmed) This paper was awarded as best original paper 2021 in the Journal of Palliative Medicine. Find out more here.
• Apolinarski B, Huperz C, Röwer HAA, Schneider N, Stiel S, Herbst FA. Expert Perspectives on the Additional Benefit of Day Hospices and Palliative Day Care Clinics in Germany: A Qualitative Approach. Am J Hosp Palliat Med. 2023; DOI: 10.1177/10499091231168574 (Am J Hosp Palliat Med)
• Apolinarski B, Stiel S, Herbst FA, Geyer S. Thin in the area? Regional disparities in hospice and palliative care in Germany. Z Evid Fortbild Qual Gesundh wesen (ZEFQ) 2024; DOI: 10.1016/j.zefq.2024.07.007 (Z Evid Fortbild Qual Gesundh wesen)
• Herbst FA, Stiel S, Damm K, De Jong L, Stahmeyer JT, Schneider N. Exploring status and demand for palliative day-care clinics and day hospices in Germany: A protocol for a mixed-methods study. BMC Palliative Care 2021;20:94 (BMC Palliative Care)
• Huperz C, Apolinarski B, Röwer HAA, Schneider N, Stiel S, Herbst FA. Integration of day hospices and palliative care day clinics into the regional hospice-palliative care landscape - A qualitative study using focus groups and interviews. Z Palliativmed. 2024. DOI: 10.1055/a-2286-1262 (Z Palliativmed)

• Stiel S, Ernst A, Apolinarski B, Röwer HAA, de Jong L, Burger B, Schütte S, Schneider N, Damm K, Stahmeyer JT, Herbst FA. Consensus-based recommendations for the future development and expansion of palliative day care clinics in Germany: Results of a Delphi study. BMC Palliative Care 2024;23:116 (BMC Palliative Care)

• Stiel S, Ernst A, Röwer HAA, de Jong L, Burger B, Schneider N, Damm K, Stahmeyer JT, Apolinarski B, Herbst FA. Empirically derived recommendations for the establishment and expansion of day hospices in Germany - results of a Delphi survey with experts. Z Evid Fortbild Qual Gesundheitswes 2024. DOI: 10.1016/j.zefq.2024.01.002 (Science Direct)

• Terjung T, Stiel S, Schneider N, Herbst FA. Status, demand and practice models of palliative day-care clinics and day hospices: A scoping review. BMJ Support Palliative Care 2021; DOI: 10.1136/bmjspcare-2021-003171 (PubMed)

Funding

The project is funded by the Innovation Fund of the Joint Federal Committee for the area of health services research (funding reference 01VSF19034). The funding period runs from 01.04.2020 to 30.09.2022.

In the long term, the project results should contribute to the patient-oriented further development of care. The integration of day services into outpatient and inpatient hospice and palliative care is to be promoted.

Consortium partners

In ABPATITE, Hannover Medical School is cooperating with AOK Niedersachsen - Die Gesundheitskasse für Niedersachsen and Leibniz Universität Hannover.

ABPATITE - Team

Prof. Dr. Dr. Stephanie Stiel (Project Manager)

• Phone: +49 511 532-4548

Beate Apolinarski (deputy project manager)

PD Dr. Franziska Herbst (deputy project manager until 30.06.2021)

• Phone: +49 511 532-4991

Alexandra Ernst (research assistant)

• Phone: +49 511 532-4380

Hanna Röwer (Study Nurse)

• Phone: +49 511 532-4987

ABPATITE - Project E-Mail

all.abpatite@mh-hannover.de

Contact address

Hannover Medical School

Institute ofGeneral Medicine and Palliative Medicine

Carl-Neuberg-Strasse 1

30625 Hanover