When one organ suddenly becomes two organs
Andrea, 28 years old, liver and kidney transplant since 2007 at the age of 14
Hello, my name is Andrea and I am 28 years old. I was born in Hamburg in October 1992. Even before I was born, my parents knew that I would be born with a kidney disease. I have polycystic kidney disease and the physicians told my parents at the time that my kidneys wouldn't last long and that I would be dependent on dialysis as an infant. But that wasn't the case. My kidneys lasted until 2006, when I was 13 years old. Even though my kidneys worked on their own for the time being, there were restrictions for me as a child. I had to take medication from birth and I wasn't as fit and healthy as other children my age.
My mother actually wanted to donate a kidney to me
When my kidney values got worse in 2006, a kidney transplant was discussed. My parents and aunts were willing to donate at the time, but only my mother was considered as a donor. The transplant was scheduled for the summer of 2006. My mother was already in the operating theater and I was to be prepared. Shortly before the operation, an antibody test is always carried out (a final test directly before Tx). It turned out that my mother was not compatible as a donor after all. We were sent home again and given a drug to destroy the antibodies. But it didn't come to that: about a week after discharge, I spat up blood. We went to the hospital straight away. After a few examinations, it was clear that my liver was also affected by my underlying disease. It had hardened so much that blood could no longer pass through it and varicose veins had formed in the oesophagus. It quickly became clear that I also needed a new liver. So in 2006 I was put on the transplant list for a liver and a kidney. I was put on peritoneal dialysis and had to go to hospital regularly to have my varicose veins checked. I had to accept a lot of restrictions because of the varicose veins. I was not allowed to eat any "hard" or "sharp" foods such as bread rolls. I was also not allowed to eat acidic foods such as tomatoes and strawberries. I wasn't allowed to run or jump and always had to be careful. The worst thing for me was that I wasn't allowed to ride during that time. Riding was my hobby. The risk of the varicose veins opening up was simply too high.
Then came the redemptive phone call
I waited a little over a year for the two organs. At the end of September 2007, two days before my 15th birthday, the call came. I remember exactly, it was a Saturday evening and we had company over for dinner and my mother had just finished cooking when the phone rang. The first thing she said on the phone was: "We can't go, we've got a house full of visitors!" Of course, I was very upset and was picked up in the ambulance. The visitor quickly finished cooking the meal and ate in peace while we made our way to the hospital. A few more tests were carried out at the hospital and then we were off.
I woke up in intensive care on my birthday
On the day of my 15th birthday, I woke up in the intensive care unit. I was in hospital for a total of 7 weeks, full of lows but also many highs. I would like to take this opportunity to say a big thank you to the team on ward 64b at the time. You were all great and always tried to give us sick children and young people a good time despite everything. My life changed completely after the transplant. I no longer had to go on dialysis, I could eat everything again and, above all, I was finally allowed to ride a horse again. Every year on the anniversary of the transplant, we light a candle and think especially of the donor and his family.
I have been transplanted for 14 years this September and I lead an almost normal life. I still have to take tablets, go to the physician regularly and there are always times when I don't feel so well, but this is nothing like before. I enjoy my life to the full. I have had my own horse for ten years and successfully completed my training as a medical assistant in summer 2020 and continue to work part-time in my training practice. I'm currently working from home due to coronavirus, but I hope to be able to return to the practice soon.
I hope that I can encourage other people affected with my story. Don't give up! You can do anything! Our family motto then and now was: "Everything will be fine."
I'm sure everything will be fine for you too!!!