Cancer predisposition syndromes (CPS) are genetic diseases with an increased risk of cancer. About 10% of all children and adolescents with cancer are affected. We, a team of scientists and pediatric oncologists, want to improve early detection and treatment options for KPS patients through our registry work. To this end, we have opened the KPS Registry.
The KPS registry collects data, biomaterials (blood and tumor material) as well as radiological images. Prof. Dr. Dr. Christian Kratz is the head of the registry. The data is collected during the initial survey and during the annual follow-up. Blood and tumor samples as well as radiological images are only forwarded to the registry if they are obtained or produced as part of regular diagnostics or treatment anyway. In particular, we want to answer the following questions with the help of the registry:
- What is the benefit of the early detection recommended by experts?
- Are there genotype-phenotype correlations?
- How high are the cancer risks in different age groups?
- What are the biological processes that lead to the development of cancer in KPS?
- What is the prognosis of cancer in patients with a genetic predisposition to cancer?
- What particular side effects of therapy occur?
- How can the treatment of people with a cancer predisposition be improved?
To the separate website of the KPS register
Much more information, such as the documents required for registration, can be found on the separate website of the KPS register.
Contact persons and contact
| Function | Name of |
|---|---|
| Contact person | Beatrice Hoffmann Birte Sänger |
| Contact via | phone number |
|---|---|
| Telephone | +49 511 532-9408 |
| Fax | +49 511 532-161026 |
| KPS-Register@mh-hannover.de |