Cancer Predisposition Syndrome Registry

Cancer predisposition syndromes are genetic diseases with an increased risk of cancer. Around 10% of all children and adolescents with cancer are affected.

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Fanconi Anemia Registry

The Fanconi Anemia Registry works closely with the Deutsche Fanconi Hilfe e.V. (German Fanconi Association). With the register, we want to learn more from, for and about people with Fanconi…

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Liquid biopsy project

The analysis of cell-free DNA (cfDNA) in blood ("liquid biopsy") is intended to make it possible to detect the development of malignant processes at an early stage and with as little invasiveness…

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ADDRess project

Nine working groups have joined forces to improve the care, early detection, diagnosis and treatment of people with impaired DNA repair.

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MyPal

Europe-wide project to improve the care of oncology patients with the help of an app. This allows patients to report their symptoms digitally. (Project completed)

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PRSZT

The Pediatric Registry for Stem Cell Transplantation (PRSZT) collects data on stem cell transplanted children in Germany for further processing at European level.

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FamKi-Onko-V

A study to investigate the support needs of families of children with cancer in the aftercare phase. (Study completed)

 

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