Dear Sir or Madam

The Centre for Rare Diseases (ZSE) Hannover would like to invite you to a public symposium on "Rare Diseases" on the occasion of "Rare Disease Day 2023" on Tuesday, 28.02.2023 at Hannover Medical School - the current program can be found here, the current hygiene concept here.

This event is now taking place for the seventh time at Hannover Medical School and we hope that we can arouse the interest of patients and patient representatives in particular. In addition to presentations, we are planning an exhibition with poster walls and exhibition tables.

If you register in advance, you can also follow the presentations online.

If you have any questions, suggestions or would like to register, please contact us at rarediseaseday@mh-hannover.de.

We look forward to seeing you there!

ZSE Team of the MHH

Please note the current visiting regulations at the MHH

Dear Ladies and Gentlemen,
Dear Colleagues

To our greatest regret, the Rare Disease Day Symposium has to be canceled again due to the ongoing infection situation in the corona pandemic. As soon as the planning for next year's symposium begins, we will inform you here.

Interested parties can also find out about events worldwideon the EURORDIS website. We wish you a good year 2022 and please stay healthy!

With best wishes,

Your team from the ZSE of the MHH

Dear Ladies and Gentlemen,
Dear Colleagues

Due to the current developments in the corona pandemic, our Rare Disease Day Symposium unfortunately cannot take place in February this year as usual. We really regret this very much. We will keep you informed about further Rare Disease Day planning on this page and hope to see you again next year. Until then, we will of course continue to keep you informed about the latest news on rare diseases. Just send us an e-mail at rarediseaseday@mh-hannover.de and we will add you to the Rare Disease Day news distribution list.

Interested parties can also find out about events worldwideon the EURORDIS website. We wish you a good year 2021 and please stay healthy!

With best wishes,

Your team from the ZSE of the MHH and Orphanet Germany

Dear Ladies and Gentlemen,
Dear Colleagues

It is with great regret that we have to inform you today that the symposium on the occasion of Rare Disease Day on Friday, March 6, 2020 at Hannover Medical School will unfortunately have to be canceled.

For reasons of precautionary health protection, we have decided that it is more important not to endanger the well-being of the visitors to the RDD Symposium, including patients and children.

We thank you for your great commitment and your willingness to stand up for people with rare diseases! We hope to see you again and get to know you at the MHH at the next Rare Disease Day at the latest!

With best wishes,

Your team from the ZSE of the MHH and Orphanet Germany

Impressions of the Rare Disease Day Symposium 2019 can be found on the Orphanet Germany website. We would like to thank the following self-help groups for their interest and great support at the RDD Symposium:

Achromatopsia Selbsthilfe e.V. - AHC18+ e.V. - Alpha1 Germany e.V. - Angelman e.V. - Working group of pancreatectomized patients e.V. - Federal Association of Congenital Vascular Malformations e.V. - Federal Association of Macular Degeneration e.V. - Federal Association of Neurofibromatosis e.V. -CDKL5-Verein Deutschland e.V. - CRPS Federal Association Germany e.V. - German Ehlers-Danlos Initiative e. V. - German GBS Initiative e.V. - German Society for Muscle Diseases e.V. - German Huntington's Aid Association - German Klinefelter Syndrome Association - German Myasthenia Society e.V. - German PSP Society e.V. - German Uveitis Working Group e.V. - Diagnosis ALS what now e.V. - Fett-SOS e.V. -INSEA Initiative for Self-Management and Active Living - LAM Selbsthilfe Deutschland e.V. - LFSA Germany e. V. - Lymph Self-Help e.V. - Marfan Hilfe e.V. Myelitis e.V. - NAKOS - Nevus Network Germany e.V. NCL Group Germany e.V. - Nephie e.V. - Network Men with Breast Cancer e.V. - Patientenuniversität an der MHH - Phosphatdiabetes Selbsthilfe e.V. - pulmonale hypertonie e.v. - pxe-netzwerk e.V. - Sanfilippo Initiative e.V. Scleroderma League e.V. - Self-help EPP e.V. - Self-help group Ichthyosis e.V. - Self-help group Glycogenosis Germany e.V. - Syngap Elternhilfe - Trigeminal Neuralgia Germany e.V. - UMG Biobank - ZNM-Zusammen Stark! e.V.