Model project genome sequencing

Rare diseases

The genome sequencing model project is a project that is anchored in the Healthcare Further Development Act (GVWG) of July 11, 2021. It was launched to integrate genomic medicine into healthcare in Germany. Genome sequencing is to be used to identify genetic changes that cause disease in patients with rare diseases or cancer and thus enable a more accurate diagnosis to be made. The aim is to provide better, individualized care for affected patients. In addition, genetic and clinical data will be collected and linked - to improve care, quality assurance, scientific research and evaluation of the project.

You can use this online form to register patients suspected of having a rare disease for the model project. Please note that currently only patients with statutory health insurance can participate in the pilot project. To register, the conditions of participation must be met and the necessary documents - such as the declaration of participation, broad consent, other documents (e.g. physician's letters or genetic findings) and the online form must be submitted to us.

Please fax or mail the necessary documents to:

Fax: +49 511 532-4521
E-mail: modellvorhaben.se@mh-hannover.de

Download documents

Single genome sequencing

Declaration of participation

Broad Consent

Investigation request (incl. GenDG consent)

Trio genome sequencing

Declaration of participation

Broad Consent

Investigation request (incl. GenDG consent)

Registration

"After submitting your request, you will receive a confirmation email from noreply@mh-hannover.de".

Your message from the contact form will not reach us until you confirm the link in the e-mail. Please also check your spam folder if necessary.

* Mandatory field in the registration form.

Versichertenstatus Patient:in: *

Health insurance number:

First name patient:in: *

Last name of patient: *

Date of birth patient:in: *

Brief medical history: *

Stationär seit:

Onset of symptoms: *

Genetic pre-diagnosis (please state date and result): *

Question: *

Type of care: *

Critically ill (intensive medical treatment and/or before organ/bone marrow transplantation): *

Number of inpatient case-related treatments in the last 5 years: *

Estimated duration of inpatient case-relevant previous therapies in days: *

Broad Consent is available and will be sent (e-mail and fax, see below): *

Declaration of participation is available and will be sent (e-mail and fax, see below): *

Hospital, Department of the responsible doctor: *

E-mail address of the responsible medical person: *

Telephone of the responsible medical person: *

I have taken note of the information obligations (see information text below the form), which inform me in full about the use of the data provided via the contact form. *

I understand that this form will not be sent until I click on the link in the email from "noreply@mh-hannover.de". *

Data protection notice

Please read the data protection notice carefully and inform yourself about how we handle your data and about your legal rights.

I have taken note of the following information obligations, which fully inform me about the use of the data provided via the contact form:

My personal data will be stored and processed on the server of the MHH data center in accordance with data protection regulations, in particular the GDPR. Colleagues of the Human Genetics outpatient clinic of the Institute of Human Genetics at MHH have access to the data. The processing of the personal data provided by me serves to contact me in order to clarify my concerns. If I send files (images and documents) via this form, I give my consent to the processing of this data. This also applies to special categories of personal data transmitted by me, such as health data. These are processed by MHH in accordance with Art. 9 para. 2 lit. b) GDPR exclusively for the clarification of my request. My personal data will only be passed on within the MHH to those departments and persons who need this data to fulfill contractual and legal obligations or to implement the legitimate interest of the MHH. My personal data will not be passed on to a third country or an international organization. After collection, my data will be stored by the Institute of Human Genetics of the MHH for as long as necessary to fulfill the purpose. As a rule, this means that my personal data will be deleted or anonymized after completion of the matter dealt with in the contact. Existing retention obligations and periods are observed. In the event of a revocation, my data that I have provided via the contact form will be deleted.

Further information on how we handle your data and your legal rights can be found in the Hannover Medical School's data protection information.

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