AMBA

Everyday burdensof mothersof children with type 1 diabetes:

Effects on employmentand need for support services in everyday life

 

Dear parents,

We know that caring for a child with type 1 diabetes demands a lot from parents in everyday life.

With this survey, we want to find out what consequences your child's type 1 diabetes has for you as parents and the whole family. We are particularly interested in whether and how your job is compatible with caring for your child.

We would also like to find out what is helpful for you and where things get stuck or difficult in everyday life.

We would like to use your answers to draw attention to the services provided by parents of children with diabetes and their need for qualified support from politicians and cost bearers in the healthcare system and to develop offers of help.

If you would like further information, please do not hesitate to contact us.

 

 

 

Prof. Dr. Karin Lange and Dr. Andrea Dehn-Hindenberg

on behalf of the Working Group for Pediatric Diabetology and DiabetesDE.

 

 

Contact address:

Dr. Andrea Dehn-Hindenberg

Hannover Medical School

Medical Psychology

OE 5430, Carl-Neuberg-Straße 1, 30625 Hannover, Germany

Phone:+49 511 532-4433

Mail: dehn-hindenberg.andreamh-hannover.de

Web: https: //www.mhh.de/institute-zentren-forschungseinrichtungen/forschungs-und-lehreinheit-medizinische-psychologie

The family is a central pillar of the health care system, in which health is strengthened and chronically ill family members are cared for.

However, the care provided by parents, especially mothers, is rarely adequately recognized, even though they are under greater physical and psychological strain than parents without a chronically ill child.

The research project examines the current professional situation of the parents, the associated physical, psychological and financial burdens and the support needs of the families affected. The results are to be widely published in order to present the particular challenges faced by these parents at a political level. A follow-up project will then develop support services and improve the everyday lives of children with diabetes and their families through targeted public relations work.