Amyloidosis is a rare disease in which the structure of certain protein molecules is misfolded. These misfolded protein molecules are difficult to dissolve and are deposited in various organs, e.g. in the heart, kidneys and peripheral nervous system. This causes the affected organs to malfunction as the disease progresses. The organ distribution and severity of amyloidosis depends on the particular subtype of amyloidosis. For targeted therapy, it is important to identify the causative protein molecule and the corresponding amyloidosis subtype.
At the beginning of the disease, the symptoms of amyloidosis are often less pronounced, atypical and variable, so that the diagnosis is often delayed and the presence of an advanced stage of the disease is not uncommon.
The Amyloidosis Center Lower Saxony enables patients with this rare disease to be diagnosed, cared for and treated at one location. Thanks to close interdisciplinary cooperation, an individual and rapid treatment decision can be made and implemented.
Clinical Departments and Institutes networked in the Amyloidosis Center Lower Saxony:
- Clinical Department of Cardiology and Angiology
- Clinic of Neurology
- Clinical Department of Haematology, Haemostaseology, Oncology and Stem Cell Transplantation
- Clinical Department of Nephrology and Hypertension
- Clinic for Gastroenterology, Hepatology and Endocrinology
- Immunology and Rheumatology ClinicClinical Department of Rheumatology and Immunology
- Clinical Department of Nuclear Medicine
- Clinical Department of Plastic, Aesthetic, Hand and Reconstructive Surgery
-Center for Pediatrics and Adolescent Medicine
- Institute of Pathology
- Institute of Human Genetics
- Institute of Diagnostic and Interventional Radiology
Contact details
Hannover Medical School
Clinical Department of Cardiology and Angiology
Special outpatient clinic for cardiac amyloidosis
Carl-Neuberg-Str. 1
30625 Hannover
Phone: 0511 532-2532, Fax: 0511 532-9435
kardiologie.ambulanz@mh-hannover.de
You can find further information under the following links:
- MHHSpecial outpatient clinic for cardiac amyloidosis
- MHH Outpatient Hepatology Department
- Diagnosis and therapy of light chain amyloidosis / AL amyloidosis (MHH hematology outpatient clinic)
- MHH Institute of Pathology
Further information can be found under the following links:
- To the website "Portal for rare diseases and orphan drugs" Orphanet
- To the website "Care atlas for people with rare diseases" SE-Atlas
- To the website "Alliance of Chronic Rare Diseases" ACHSE e.V.
Please refer to the list below for an overview of ZSE specialist centers participating in registries:
Clinical trials with the participation of ZSE-B centers:
You can download the current publications of this ZSE-B center as PDF files under the following link: