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Consultation hours and B-centers of the ZSE
Are you looking for a specific center that is familiar with your disease? Would you like more information about your disease? Or would you like to get in touch with a patient organization?
In our ZSE Navigator you will find all the consultation hours and B Centers that are established at the Centre for Rare Diseases at Hannover Medical School, divided into body areas. A click on the disease leads you to further information, contact persons of the individual centers as well as links to institutions and patient organizations.
Further information on the ZSE Long-/Post-COVID consultation hours can be found here.
Genetic causes for numerous diseases can be found more and more frequently today thanks to modern diagnostic procedures. The teams at the two individual centers "Rare Syndromic Diseases" and "Cancer Predisposition" want to help you find out whether your disease has a genetic cause. They also offer genetic counseling for you and your family. If a genetic cause is found, it is possible to establish suitable early detection and other measures for you.
The "Genes" department is represented by the Institute of Human Genetics and the Clinical Department of Pediatric Haematology and Oncology. Both work closely together in diagnostics, counseling, therapy and early detection.
- Rare syndromic diseases
- Cancer predisposition
- NF1, NF2, Schwannomatosis and VHL
Numerous rare diseases are associated with impairments of the central or peripheral nervous system or the musculature. The Centre for Rare Diseases has therefore united four individual centers in this area, which deal with tuberous sclerosis, neuromuscular diseases, hereditary brain tumors and autoimmune encephalomyelitis. These individual centers are represented by the Clinical Department of Neurology and the Clinical Department of Paediatric Kidney, Liver and Metabolic Diseases.
If you have already been diagnosed, our medical advisory team will be happy to put you in touch with the relevant center.
Patients with rare diseases often have a long medical odyssey behind them, have been suffering for a long time from complaints for which nobody can find an explanation and find it difficult to find contacts who are familiar with the treatment of patients with rare diseases. It is not surprising that mental illnesses also occur in this context. The care of people with a rare syndromic disease or a mental disability is also a particular challenge.
In order to help patients not only with somatic but also with mental illnesses, the "Mental Health in Rare Syndromic Diseases" Center has been established at the Centre for Rare Diseases.
Hearing or vision impairments can affect both children and adults and often lead to numerous impairments in everyday life. This makes it all the more important to be able to make the correct diagnosis and provide successful treatment for rare diseases of the hearing and visual organs.
At the Centre for Rare Diseases, the areas of hearing and vision are therefore represented by the Clinical Department of Ear, Nose and Throat Medicine and the Clinical Department of Throat Medicine. If you have already been diagnosed, our medical advisory team will be happy to put you in touch with the relevant center.
Lung diseases can be of very different types and causes, can be accompanied by mild or severe symptoms, can affect young and old, and can be common or very rare. At our ZSE, we want to help patients with rare lung diseases, both children and adults.
In order to make the correct diagnosis and provide you with the most appropriate treatment possible, we have established the individual centers listed opposite. If you have already been diagnosed, our medical advisory team will be happy to put you in touch with the relevant center.
Rare diseases that affect the heart are extremely diverse: they can have numerous causes, manifest themselves in different ways and occur in both childhood and adulthood. In addition, some rare heart diseases can run in families and require comprehensive advice, diagnosis and care.
If you have already been diagnosed, our medical advisory team will be happy to put you in touch with the relevant center.
The highly complex field of metabolic diseases deals with disorders in the build-up, conversion and breakdown of numerous substances in the human body. These metabolic diseases often affect many different organs, the clinical picture is not always clear and diagnosis is difficult. In addition, some of these metabolic diseases only affect a small number of patients, which is why the "Rare Metabolic Diseases" section has been established at the Centre for Rare Diseases. If you have already been diagnosed with a rare metabolic disease, our medical advisory team will be happy to put you in touch with this center.
Proverbially, good advice is expensive when something gets to you. The Centre for Rare Diseases at Hannover Medical School has therefore established five individual centres that specialize in the care and treatment of patients with rare kidney diseases. The spectrum ranges from congenital and inherited kidney diseases to complex systemic diseases involving the kidneys. Both children and adults are cared for in the various individual centers.
If you have already been diagnosed, our medical advisory team will be happy to put you in touch with the relevant center.
Changes in the blood can be very diverse. They can be congenital or acquired, have numerous causes and manifest themselves in different ways. They can affect people of all ages, occur frequently, but can also be very rare. The field of cancer is no less diverse.
In order to provide a point of contact for people with rare blood diseases and rare benign or malignant tumors, five individual centers have been established at the Centre for Rare Diseases at Hannover Medical School.
In our daily lives, our defense system (immune system) does hard work. This usually goes unnoticed by us and we only become aware of it when it is not working properly. There can be many causes for this and it is not always easy to find the right diagnosis. The same applies to patients with rare inflammatory rheumatic diseases. A complex clinical picture and the involvement of numerous organ systems require a great deal of expertise in order to make the correct diagnosis and carry out successful treatment.
For this reason, the Centre for Rare Diseases has established the individual centers listed opposite, which have a great deal of expertise and experience.
If you have already been diagnosed, our medical advisory team will be happy to put you in touch with the relevant center.
Our digestive tract is long - and the list of rare diseases that can affect the digestive tract or the liver is also long. Diseases can be congenital malformations or only develop in the course of life.
The Centre for Rare Diseases has established a single center for the care of patients with oesophageal atresia, and patients with hereditary bowel cancer are also cared for by the "Cancer Predisposition" center.
The skin is the largest organ of the human body and, unlike most other organs, is externally visible. Diseases of the skin are also often impossible to overlook and for this reason alone are particularly distressing for those affected. However, the clinical picture is very variable, as are the causes. The Centre for Rare Diseases has therefore established individual centers to help affected patients obtain a diagnosis and subsequent promising therapy.
If you have already been diagnosed with a rare skin disease, our medical advisory team will be happy to put you in touch with the relevant center.
Suffering from a rare disease brings with it many challenges. If the disease affects the reproductive organs, it is a challenge just to talk about it. This makes it all the more important that patients with rare diseases of the reproductive organs find a competent and empathetic contact person who can advise, care for and treat them.
At the Centre for Rare Diseases, women with hereditary breast and ovarian cancer are linked to the "Cancer Predisposition" center. In addition, the Centre for Rare Diseases has been established for gynecological diseases.
- Amyloidosis
- Congenital blood formation disorders
- Congenital immunodeficiencies in adulthood
- Congenital immunodeficiencies in childhood
- Congenital kidney diseases
- Atypical Parkinson's syndromes
- Autoimmune encephalomyelitis
- Blistering autoimmune diseases
- Electrical and structural cardiomyopathies
- Inflammatory systemic diseases with renal involvement
- Genetic kidney diseases
- Hereditary angioedema
- Small cell ovarian carcinoma of the hypercalcemic type (SCCOHT)
- Cancer predisposition
- Metabolic and genetic epilepsies
- Fabry disease
- Cystic fibrosis/cystic fibrosis
- Neuromuscular diseases
- NF1, NF2, schwannomatosis and VHL
- Oesophageal atresia
- Peripartum cardiomyopathy
- Primary ciliary dyskinesia (PCD) and Kartagener's syndrome
- Pulmonary hypertension in adulthood
- Pulmonary hypertension in childhood
- Mental health in rare syndromic diseases
- Rare congenital skin diseases
- Rare diseases of the hearing organs
- Rare lung diseases in childhood
- Rare rheumatic diseases in adulthood
- Rare rheumatic diseases in childhood
- Rare metabolic diseases
- Rare syndromal diseases
- Rare tumors
- Thrombotic microangiopathy
- Tuberous sclerosis
