The Patient Advisory Board

• Spokesperson of the patient advisory board
• Resident in Laatzen (Hanover region)

"I had a kidney transplant at the MHH in 2017, I received the kidney through a living donation from my wife. My current aftercare alternates between the practice at Heidering in Hanover and the MHH. My most important goals on the Patient Advisory Board are to improve communication between the Transplant Centre and patients and to strengthen cooperation and communications between physicians in private practice and the Transplant Centre. The optimization of patient-relevant processes within the Transplant Centre and the strengthening of public awareness of organ transplantation are of great concern to me."

"I had a heart transplant in 2021 at the age of 55. I am currently being looked after in the heart transplant outpatient clinic at the MHH and have regular check-ups.

I would like to get involved in the patient advisory board to support other patients and share my experiences before and after the operation."

• Member: Federal Association of Organ Transplant Patients e.V.

"I had a heart transplant at the German Heart Centre in Berlin in July 2022. This experience made me want to pass on my experiences of heart transplantation. It would be great if I could contribute to the successful work of this committee through my experiences as a heart transplant patient."

• Member: Self-help organization for children and adolescents with kidney disease
• Resident in Hanover

"I had a kidney transplant at the MHH back in 2003. I am currently being looked after in the NTX outpatient clinic at the MHH and go there twice a year for a check-up, and I am also regularly looked after by a nephrologist in private practice. I am a member of the association Selbsthilfe nierenkranker Kinder und Jugendlicher e.V. and would like to represent the concerns of children, young people and parents on the patient advisory board. I believe that something can only be changed if problems are addressed clearly and openly."

• Member: Federal Association of Organ Transplant Patients e. V.

• Resident in Verden (Aller) Lower Saxony

  I had a lung transplant at the MHH in June 2020. My aftercare takes place regularly twice a year in the LuTX outpatient clinic at the MHH. My goal is to achieve an improvement in aftercare through intensive exchange with the outpatient clinic and the TX center. I would also like to raise public awareness of organ donation. To this end, I am also involved in the BDO - Federal Association of Organ Transplant Patients and sometimes give lectures on the subject of organ donation and transplantation.

• Member: Lebertransplantierte Deutschland e.V.
• Resident in Bünde, NRW

"In November 2011, at the age of 43, I was transplanted at the MHH and received my greatest gift - a new liver. My aftercare takes place in the LTx outpatient clinic at the MHH together with my family physician and other physicians in my local area.

I am involved in the Lebertransplantierte Deutschland e.V. association for waiting patients and patients after liver transplantation and their relatives. It is important to me that patients are always well informed and have another point of contact in addition to the Transplant Centre. It is also important to me to raise public awareness of organ donation.

On the Patient Advisory Board, I would like to advocate for the interests of patients and hope that the Patient Advisory Board will establish itself as a kind of interface between the Transplant Centre, aftercare and patients."

 

 

• Resident in Oldenburg (Oldenburg)

I received a kidney as a living donation from my mother in February 2024 at the age of 40. I would have liked to have had a contact person during the process. For this reason, I am involved in the patient advisory board.

I am happy to support and accompany you in this situation and share my experiences. If you have any questions, concerns or simply want to talk, I will be happy to help.

I look forward to getting to know you and to accompanying and supporting you on your journey.